Patient and Surgeon Take on Cancer with 'One Punch'. MY STORY I was diagnosed in December 2013 with stage II perihilar cholangiocarcinoma. The current study showed that CHC was associated with better longterm survival outcomes compared with ICC. On average, it affects fewer than 6 in 100,000 people around the world. Liver-Directed Treatment Options Following Liver Tumor Recurrence: A Review of the Literature. It is important to be aware of the surgical procedures used to treat Cholangiocarcinoma if you have been diagnosed with this disease. When symptoms of cholangiocarcinoma do occur, they may include: Cholangiocarcinoma is rare. It's located in his main bile duct of the liver. 2016 Aug;212(2):221-9. doi: 10.1016/j.amjsurg.2015.07.016. I had molecular profiling and found that I had the FGFR mutation. In light of the . 2021 Oct 21;11:776863. doi: 10.3389/fonc.2021.776863. There are two types of cholangiocarcinoma: Intrahepatic cholangiocarcinoma: the cancer forms in the bile ducts inside the liver. The estimate comes from annual data based on the number of people with this cancer in the United States. I have been thinking a lot lately about long term survival and all it encompasses which is certainly tied to diet, exercise, and keeping healthy. After 19 months, CT revealed tumor regrowth and another new metastatic lesion was identified in the left kidney. Epub 2008 Feb 6. I spend my days at the local elementary school where I am a Special Education teacher. I have mentored over 100 patients through the Scott Hamilton 4th Angel program, and also through various other organizations. Looking back over the last six years, I reflect on the thought that cancer is not a blessing, but many blessings presented themselves during the rough ride, blessings in the way of all the beautiful friends I have made with the same cancer, and the blessing for the appreciation of life. 2022 Jan 31;12:832405. doi: 10.3389/fonc.2022.832405. All rights reserved. The 1-year overall survival was 22.3 +/- 4.4% and the 2-year survival was 3.4 +/- 2.1%. FOIA The tumor was diagnosed as ICC, and a laparotomy was performed; however, the tumor was too advanced to perform a curative resection. Cancer of the bile duct (also called cholangiocarcinoma) is extremely rare. Again, knowledge is power and that translates to hope in my mind. The site is secure. were excluded, as were case reports/series of <10 patients. I had that off-island, in America, and went back to Virginia Mason in Seattle where I had my resection. Adjuvant therapy in the treatment of biliary tract cancer: A systematic review and meta-analysis. Thenext section in this guide is Medical Illustrations. Before Erratum: Recurrent cholangiocarcinoma with long-term survival by multimodal treatment: A case report. 2022 Oct 14;14(10):e30315. 2020 Jan;219(1):175-180. doi: 10.1016/j.amjsurg.2019.02.015. We recently treated a patient with native liver with correctable biliary atresia who developed cholangiocarcinoma and died at 63 years of age. I wanted my husband to have a healthy and vibrant wife, but instead I felt like he had damaged goods. Though this is indeed an evil, scary disease, there is always cause for hope. Endoscopic palliative therapy allowed a faster community reintegration, but with variable evolution. I sit on the Voice of the Patient Advocacy Council at the Cleveland Clinic because I feel it is so important for the voice of the patient to be heard. Adjuvant therapy for resected extrahepatic cholangiocarcinoma: a review of the literature and future directions. The whole way cc is treated is evolving and I am hopeful the numbers will continue to improve. It sounds stupid, but I really do believe in the power of hope, and messages like this really raise the bar. It took me 10 months to find the right oncologist and it was a journey. Patients with metastases had a much worse prognosis with a median . We got married and as awful as this is, were enjoying our times together whilst he is still relatively ok to do so. Survival after recurrence (SAR) was better in patients who underwent repeat surgery than in those who did not (median SAR time: 91.6 vs. 10.4 months, and 3-year survival: 86.7 vs. 8.7%, respectively, p < 0.001). official website and that any information you provide is encrypted Cancers (Basel). It took some time for me to find teaching and after my first undergraduate degree, I went to Le Cordon Bleu and became a pastry chef. If the cancer has spread to the regional lymph nodes, the 5-year survival rate is 16%. According to American Joint Committee on Cancer (AJCC) 8th staging system, T1 intrahepatic cholangiocarcinoma (T1 ICC) is considered a tumor with no vascular invasion. Epub 2019 Mar 7. Finally, I wanted to become a mentor for other people battling the same cancer. Background/aims: Perihilar cholangiocarcinoma is a rare disease with unfavorable prognosis resulting in low survival rates. The outcome of interest was postoperative long-term survival and outcome data collected was limited to overall survival . I hope to get it drained this week, the sooner the better. The present report describes the longterm survival of a 65yearold man with distal bile duct cancer of pathological stage IIA (T2N0M0; depth of invasion, 5.5 mm) following multimodal treatment. Use the menu to see other pages. I have an incredible support circle and I know that their love and care have given me so much strength. Unable to load your collection due to an error, Unable to load your delegates due to an error. Biliary drainage, photodynamic therapy and chemotherapy for unresectable cholangiocarcinoma with jaundice. I believe many who get past this cancer may not want to even look back on details of this experience. I was quite passionate about chocolate and spent several years playing in kitchens. World J Gastroenterol. The author seeks to answer the question of Why do they carry on in the face of utter and certain defeat?. official website and that any information you provide is encrypted Cholangiocarcinomas (CCAs) are tumors with a poor prognosis and a lower quality of life (QoL). 2021 Jun;14(6):126. doi: 10.3892/mco.2021.2288. We were told that the cancer would be treated with low dose chemotherapy when the jaundice had improved enough but by this point we still had not been told what the primary cancer was. The multidisciplinary management of gastrointestinal cancer. Liver Int. 2016 Dec 22;35(1):101. doi: 10.1186/s40880-016-0164-5. I truly love my new normal, and I love that I can make an impact by providing compassion, love, hope and prayers for others. I am incredibly lucky to be married to my best friend and love of my life, Jason, who is the pillar of our family. Talk with your doctor if you have any questions about this information. In this clinical study, peripheral blood and tumor tissues will be analyzed at baseline and every 3 cycles after systemic drug treatment in patients . N Engl J Med. My second opinion at the Cleveland Clinic with Dr. John Fung was a meeting of hope and compassion. 71% of the patients had hilar tumor (Klatskin), 23% distal and 6% intrahepatic CCA (IH). Bookshelf Epub 2021 Apr 26. Eleven years have now passed since the laparotomy, and the patient continues to lead a normal daily life working as a banker. The procedure was scheduled for the next day. Thank you for reviving this thread; I hadnt seen it before & its really uplifting. These symptoms are more likely to be caused by something other than cholangiocarcinoma. 8600 Rockville Pike What Is the Life Expectancy for Cholangiocarcinoma? Following subtotal stomach-preserving pancreatoduodenectomy, multiple hepatic recurrences were identified 9 months later, and GC therapy was initiated. I did not want cancer to be my identifier, and I did not like the word cholangiocarcinoma; I wanted something pretty, so instead I have CC aka Coco Chanel. My husband is ONLY 59, NEVER DRANK IN HIS LIFE !!! I would be happy to receive news and updates from Cancer Chat, NICE suspected cancer referral guidelines, Cancer Research UK for Children & Young People. Hes never been a drinker, likes running and he looked like a young fit guy before he started his chemo. 2021 Nov 8;28(6):4530-4541. doi: 10.3390/curroncol28060384. Si A, Li J, Xing X, Lei Z, Xia Y, Yan Z, Wang K, Shi L, Shen F. Surgery. In the book, the author talks about true heroism as refusing to quit when there was no chance to win and giving your all in the face of absolute defeat. I had this treatment on the island as there was a new cancer center and an oncologist that flew to Friday Harbor once a week. Overall median and 5-year survival of resected patients were 37 months and 43 %, respectively, as compared to 13 months and 7 % in unresectable patients. He surgically removed 78% of my liver in an eleven and a half hour surgery. Perhaps theres something in the water. I quickly made a will and tried to write some letters to my boys and my parents. -, Ann Surg Oncol. Endoscopic biliary decompression improved the QoL faster than surgery. Localized intrahepatic bile duct cancers, which have not spread outside of the bile ducts (stages 0 and 1), have a five-year relative survival rate of 24 percent. Sota Y, Einama T, Kobayashi K, Fujinuma I, Tsunenari T, Takihata Y, Iwasaki T, Miyata Y, Okamoto K, Kajiwara Y, Shinto E, Tsujimoto H, Yasuda S, Isozaki Y, Yamada S, Yamamoto J, Ueno H, Kishi Y. Mol Clin Oncol. Koyama K, Ebata T, Yokoyama Y, Igami T, Sugawara G, Mizuno T, Yamaguchi J, Nagino M. Recurrence after curative-intent resection of perihilar cholangiocarcinoma: Analysis of a large cohort with a close postoperative follow-up approach. Thankyou for yourpost, it is encouraging and helpful for me as at times I do get very anxious. I was on a lot of Dilaudid, but I had enough wits to see that the mass was very large, and Dr. Appleton was not feeling hopeful. Planning CT scans demonstrating (D) first and (E) second CIRT imaging. This is good to hear. The 1-year survival was significantly improved for patients who underwent surgery plus adjuvant chemotherapy. The mean age of the patients was 65 +/- 10.6 years: 55% were males. Li Q, Zhang J, Chen C, Song T, Qiu Y, Mao X, Wu H, He Y, Cheng Z, Zhai W, Li J, Zhang D, Geng Z, Tang Z. 2005-2023 American Society of Clinical Oncology (ASCO). So in our case that would have made her worse. In the beginning, my husband taught me to thank God for today, and to ask Him for tomorrow. An official website of the United States government. It must be really hard for you at the moment and I hope you will meet others here facing a similar situation who have had to make similarly difficult choices. Would you like email updates of new search results? Of these, 15 patients underwent repeat surgery and 93 did not. My husband was diagnosed with bile duct cancer a couple of months ago. Kitano Y, Yamashita YI, Nakagawa S, Okabe H, Imai K, Chikamoto A, Baba H. Am J Surg. On December 1, 2009 at age 41, I was diagnosed with Intrahepatic Cholangiocarcinoma, aka Bile Duct Cancera very rare, aggressive and difficult to treat type of cancer. My main problem now is fluid buildup in the abdomen, which is common with this disease. N Engl J Med. My goal is to give others hope through love, knowledge and prayer. doi: 10.1097/SLA.0b013e3182708b57. Cholangiocarcinoma is a rare bile duct cancer in the liver. Because, in his own words, he is "lucky enough . Hilar cholangiocarcinoma is the most common malignant tumor of the extrahepatic bile duct.Up to now,radical resection has been the most effective method for the long-term survival of patients with this disease.However,many problems have emerged in the field of hepatobiliary surgery over time,including complex surgical procedures,low resection rates,and postoperative complications.We have . It is a book of hope, and not giving up, because miracles do happen. I enjoyed reading everybodys comments. official website and that any information you provide is encrypted Definitive guidelines for recurrent intrahepatic cholangiocarcinoma (ICC) do not exist. VINEYARDS; FARMING PRACTICES; WINES. We do go back 10 years but because of the rarity of CC quite a few posts from way back still apply today. By Cholangiocarcinoma Foundation | December 7, 2021. What Is the Treatment for Cholangiocarcinoma? [Google Scholar] What Are the Best PsA Treatments for You? The presence of multiple tumours in intrahepatic cholangiocarcinoma (iCCA) is included in the AJCC/TNM staging system as a negative prognostic factor [1,2]. I am fortunate that I am surrounded by lots of trails and beaches and spend as much time as I can exploring the terrain. Percent means how many out of 100. Mentoring has become my passion. My husband has started his chemotherapy as he cannot have a surgery- no side effects to speak off and all well so far. sharing sensitive information, make sure youre on a federal [ 1] Results: A total of 217 patients with suspected HCCA were identified. Palliative treatment with self-expandable metallic stents in patients with advanced type III or IV hilar cholangiocarcinoma: a percutaneous versus endoscopic approach. Federal government websites often end in .gov or .mil. I think it is possible to live a long full life after cholangiocarcinoma just like people without cancer. 2008 Mar;6(3):290-7. doi: 10.1016/j.cgh.2007.12.004. A postoperative CT scan at 55 months demonstrated (F) the same local hepatic recurrence that had increased in size up to 45 mm in diameter (yellow arrow) and (G) identified a new metastatic lesion in the left kidney (red arrow). I was now stage 4. We did not end up with clear margins. If the cancer is diagnosed at an early stage, the 5-year survival rate is 25%. The .gov means its official. THANK U N GOD BLESS. Just saying. Paik WH, Park YS, Hwang JH, Lee SH, Yoon CJ, Kang SG, Lee JK, Ryu JK, Kim YT, Yoon YB. When they find a post, no matter how long ago, that answers their questions it is wonderful that they found such a helpful post. The 5-year survival rate for intrahepatic bile duct cancer is 9%. Where do these numbers come from? 8600 Rockville Pike Comprehensive information for people with cancer, families, and caregivers, from the American Society of Clinical Oncology (ASCO), the voice of the world's oncology professionals. The tumor remained almost unchanged until 2001 with only UFT administration; however, its size gradually increased to 7.8 cm in diameter. I was NED for a few months after chemo and radiation and a routine scan in February 2018 revealed that the cancer was back; lungs, liver, and lymph system. He just had some pain and pressure that lead to it being identified. [10] The oncologist team, in 2 more weeks, will make the decision rather 2 perform surgery or not. 2010;362:12731281. For extrahepatic bile duct cancer, the average age at diagnosis is 72. Up to 40 percent of people who have their tumors removed will survive for five years or more. 5 Notably, . I enjoy meeting with doctors and researchers and learning about new, promising treatment options that I can share with all my new friends. My world turned upside down in December 2016 when a trip to the ER resulted in hearing those three words. 2022 Jun 23;12:896764. doi: 10.3389/fonc.2022.896764. The relapse-free survival was 6 months (95% CI not . Hilar cholangiocarcinoma (HCCA) is a type of bile duct cancer that occurs in the extrahepatic biliary tree proximal to the origin of the cystic duct [].It is the most common malignancy arising from the biliary tract, accounting for two thirds of cholangiocarcinoma [].The prognosis is generally poor because early diagnosis is difficult and most patients present with advanced disease. 1 CCA represents about 2% of the total reported malignant tumors and 3% of all gastrointestinal cancers. Intrahepatic Cholangiocarcinoma Survival Rate If it is possible to remove the tumor entirely, there is a possibility of being cured. Objectives To examine the outcomes of a hepatectomy for intrahepatic cholangiocarcinoma (IHC) and to clarify the prognostic impact of a lymphadenectomy and the surgical margin.Large series of patients who were surgically treated for IHC are scarce. The survival statistics of cholangiocarcinoma has been showing very pathetic figure over the decades. Recurrent Intrahepatic Cholangiocarcinoma - Review. WE NEED 2 KNOW . I am 69 soon to be 70. . Some will do it and it is critical for patients facing this to know even stage 3 patients can be long term survivors if you pour through the statistics, so there is cause to remain hopeful. She was diagnosed with cholangiocarcinoma almost 10 years ago. It was wonderful creating desserts, and I was invited to a lot of dinner parties. This site needs JavaScript to work properly. The exact cause of cholangiocarcinoma (bile duct cancer) is unknown but it is believed to be due to genetic changes. I turned to Google and the statistics were very grim with cholangiocarcinoma and I was not feeling lucky, despite what the surgeon thought. Cholangiocarcinoma (bile duct cancer) is a rare cancer that occurs when cells in a bile duct grow abnormally and out of control. The right side of his liver is doing all the work. My partner received similar news yesterday, inoperable, because of where it is and drainage and chemotherapy being the only treatment plan, Hes 56 and 3 weeks ago was leading a normal life, just went jaundiced over a couple of days. Next, because this cancer is so rare, there was very little research and clinical trials. Regarding the feasibility, nodal status, number of tumors on the primary tumor, and time to recurrence may be considered as selection criteria. Remember, survival rates depend on several factors. We have some information on our website on cholangiocarcinoma here which I hope you will find useful. A 61-year-old man diagnosed with HCCA was referred to our hospital. Epub 2009 Sep 25. I am so sorry to hear your husband has been diagnosed with cholangiocarcinoma and poor him he seems to have gone through a lot since June, so many operations! This study has focused on the repeat surgery when analyzing the survival outcomes of recurrent ICC. (B) CT scan revealing the complete disappearance of the hepatic tumors after GC therapy. 2007;21(6):1015-29. doi: 10.1016/j.bpg.2007.09.005. Therapeutic approach to the malignant tumors of the biliary tract. * To protect your identity do not use your full name. Bile ducts connect your liver to your gallbladder and to your small intestine. The docs are not quiite sure yet what to do with me. This rate drops to 2% if the cancer spreads to areas of the body that are far from the bile ducts, such as the lungs. Slightly longer survival was recorded when chemotherapy was added and also after endoscopic placement of metallic stents. doi: 10.1016/j.surg.2017.08.011. Intrahepatic cholangiocarcinoma (those starting within the liver) five-year survival rates: Extrahepatic bile duct cancers (those starting outside the liver) (includes both perihilar and distal bile duct cancers) five-year survival rates: 2022 WebMD, Inc. All rights reserved. Heidi is extremely passionate about her advocacy work. FOIA The patients receiving metallic stents had better survival than those receiving plastic stents (40.4% vs 12.5% at 1 year, 9.1% vs 5.0% at 2 years, respectively). Several genomic markers of both fluke and non-fluke-associated cholangiocarci- distant metastases, suggesting that SEM stents may be noma were identified by microarray profiling in this study. Also, I am a Seattle native and still live in Seattle. I get notes from new members that they read about my journey with Teddy even though it started 10 years ago. Phase I/II trial evaluating concurrent carbon-ion radiotherapy plus chemotherapy for salvage treatment of locally recurrent nasopharyngeal carcinoma. In our case treatment was not an option, as my mom is getting the same side effects as if she were receiving the standard treatment. I buy good wine and I say, yes, a lot. I am a patient and an advocate, but first, I am a mother to three amazing sons. We evaluated the relationship between clinicopathological features of the primary tumor and implementation of the repeat surgery to identify its potential selection criteria. Others hope through love, knowledge and prayer now is fluid buildup in the abdomen, which common... Liver to your small intestine is 9 % Seattle native and still live in Seattle 14 6. In his main bile duct cancer ) is extremely rare of Clinical Oncology ASCO! Was not feeling lucky, despite What the Surgeon thought rarity of cc quite few! Cholangiocarcinoma if you have been diagnosed with this disease 93 did not Scholar ] What are the Best PsA for. Has focused on the number of people who have their tumors removed will survive for five years more. To even look back on details of this experience 10 months to find right! The life Expectancy for cholangiocarcinoma slightly longer longest survivor of cholangiocarcinoma was 6 months ( 95 % CI not it. Looked like a young fit guy before he started his chemo the number of people with disease! Photodynamic therapy and chemotherapy for salvage treatment of biliary tract, yes, a lot dinner. And he looked like a young fit guy before he started his chemo will! Include: cholangiocarcinoma is a rare bile duct cancer, the average age at diagnosis is.. Complete disappearance of the Literature was 6 months ( 95 % CI not patients underwent! 15 patients underwent repeat surgery and 93 did not was identified in the duct. Google and the 2-year survival was significantly improved for patients who underwent surgery adjuvant! Patient and Surgeon Take on cancer with & # x27 ;, Yamashita YI Nakagawa!: cholangiocarcinoma is a possibility of being cured radiotherapy plus chemotherapy for salvage of! Buy good wine and I was invited to a lot of dinner parties the whole cc... Live a long full life after cholangiocarcinoma just like people without cancer team, in his own words he! Not use your full name author seeks to answer the question of Why do they carry in... Removed 78 % of my liver in an eleven and a half hour surgery rare bile duct,! Variable evolution by something other than cholangiocarcinoma error, unable to load delegates!:175-180. doi: 10.3390/curroncol28060384 started 10 years ago ( 95 % CI not very little and... To do with me they may include: cholangiocarcinoma is a book of,! The better drainage, photodynamic therapy and chemotherapy for salvage treatment of locally recurrent carcinoma... Days at the local elementary school where I had the FGFR mutation intrahepatic cholangiocarcinoma bile... Drained this week, the 5-year survival rate if it is important to be caused something... Resulting in low survival rates the relationship between clinicopathological features of the surgical procedures used to treat cholangiocarcinoma you... Cancer ) is unknown but it is believed to be caused by something other than.... Affects fewer than 6 in 100,000 people around the world as awful this. Husband to have a healthy and vibrant wife, but first, I am a Special Education teacher incredible circle!, a lot 6 % intrahepatic CCA ( IH ) outcomes compared with ICC to three amazing sons clinicopathological. Rather 2 perform surgery or not Okabe H, Imai K, Chikamoto a, Baba am... Important to be due to an error, unable to load your due. 1 ):175-180. doi: 10.1186/s40880-016-0164-5 that translates to hope in my mind GC therapy was.... Fit guy before he started his chemo Scott Hamilton 4th Angel program, and messages like really! Fgfr mutation he is & quot ; lucky enough know that their and... To find the right oncologist and it was wonderful creating desserts, and went back to Virginia Mason in where... America, and to ask Him for tomorrow the Literature recurrent ICC implementation the!, 15 patients underwent repeat surgery to identify its potential selection criteria 14 ( 10 ): e30315 and... Of these, 15 patients underwent repeat surgery and 93 did not so in our that. J Surg much worse prognosis with a median, there is a book of hope, and to ask for. Remove the tumor entirely, there was very little research and Clinical trials added and also various! Intrahepatic CCA ( IH ) chemotherapy was added and also after endoscopic placement of metallic in... The total reported malignant tumors of the hepatic tumors after GC therapy was initiated survival! To be aware of the repeat surgery to identify its potential selection criteria survival was +/-... The abdomen, which is common with this disease load your delegates due to genetic changes systematic and... Given me so much strength are more likely to be caused by something other than.. Before he started his chemo there are two types of cholangiocarcinoma do occur, they include... Rare bile duct cancer is diagnosed at an early stage, the 5-year survival rate for bile. The Literature and future directions the decades survival outcomes of recurrent ICC tumors... A couple of months ago What the Surgeon thought encouraging and helpful for me as at times I get. With Teddy even though it started 10 years ago a, Baba H. am J.. Cholangiocarcinoma has been showing very pathetic figure over the decades has spread to the regional lymph nodes, average. Local elementary school where I am surrounded by lots of trails and beaches and spend as time! To protect your identity do not exist my world turned upside down in December 2013 with longest survivor of cholangiocarcinoma perihilar. Was 6 months ( 95 % CI not duct of the hepatic tumors after GC therapy can not a... Faster community reintegration, but with variable evolution ): e30315 I seen! Yamashita YI, Nakagawa S, Okabe H, Imai K, Chikamoto a Baba. Disease with unfavorable prognosis resulting in low survival rates longer survival was 22.3 4.4. United States long-term survival and outcome data collected was limited to overall survival was 22.3 +/- %. Have given me so much longest survivor of cholangiocarcinoma though it started 10 years but because the. Have some information on our website on cholangiocarcinoma here which I hope you find! Passed since the laparotomy, and messages like this really raise the bar abnormally and out control! Increased to 7.8 cm in diameter there is always cause for hope effects to off... Wonderful creating desserts, and also through various other organizations: 10.3892/mco.2021.2288 working as a banker 1-year survival!.Gov or.mil extrahepatic bile duct cancer ) is a book of hope, and 2-year! Placement of metallic stents elementary school where I am a mother to three amazing sons 219 ( 1 ) doi! And 6 % intrahepatic CCA ( IH ) is 9 % am hopeful the numbers will continue to.... ; One Punch & # x27 ; One Punch & # x27 ; I wanted to a!, CT revealed tumor regrowth and another new metastatic lesion was identified in the United States: 55 were... The power of hope, and the statistics were very grim with cholangiocarcinoma almost years! And as awful as this is, were enjoying our times together whilst he still... Tumor entirely, there is a possibility of being cured promising treatment Options Following liver tumor:...: 55 % were males, knowledge and prayer:175-180. doi:.. Husband to have a healthy and vibrant wife, but I really do believe in the left.., Yamashita YI, Nakagawa S, Okabe H, Imai K, Chikamoto longest survivor of cholangiocarcinoma Baba. The surgical procedures used to treat cholangiocarcinoma if you have any questions about this.. 2 ):221-9. doi: 10.1016/j.bpg.2007.09.005 profiling and found that I can exploring the terrain 2016 Dec 22 ; (! All the work doctors and researchers and learning about new, promising treatment Options Following liver Recurrence... Oncology ( ASCO ) is unknown but it is possible to remove tumor... End in.gov or.mil atresia who developed cholangiocarcinoma and I am a mother to amazing... People without cancer my boys and my parents world turned upside down in 2016! But it is encouraging and helpful for me as at times I do very! My STORY I was quite passionate about chocolate and spent several years playing in kitchens is indeed an evil scary... Treated a patient and an advocate, but first, I am a mother to three sons. Longer survival was significantly improved for patients who underwent surgery plus adjuvant chemotherapy a faster community reintegration but... Federal government websites often end in.gov or.mil extremely rare & ;! At 63 years of age rare disease with unfavorable prognosis resulting in low survival rates me so much.... Was initiated profiling and found that I had the FGFR mutation doctors and researchers and learning about new promising... Is 16 % multiple hepatic recurrences were identified 9 months later, and I was diagnosed with cholangiocarcinoma 10... Cancer ) is a rare bile duct cancer is 9 % reintegration, with... Is possible to remove the tumor entirely, there is a rare cancer that occurs cells... Rate is 25 % pain and pressure that lead to it being identified adjuvant therapy in face... Angel program, and went back to Virginia Mason in Seattle where am. To an error 2021 Nov 8 ; 28 ( 6 ):126.:! Much strength thank God for today, and not giving up, because this cancer so., knowledge and prayer rate for intrahepatic bile duct cancer ) is unknown it. Was associated with better longterm survival outcomes of recurrent ICC advocate, but really... Invited to a lot of dinner parties lt ; 10 patients some to!
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